BRCAfest – Food, fun, and fundraising!

On Sunday 9th April, I hosted BRCAfestmy first fundraising afternoon for the Royal Marsden Cancer Charity. The aim of the event was to raise awareness about BRCA gene mutations and ovarian cancer, as well as funds for the Royal Marsden cancer Charity. It was an honour to be joined by Mr John Butler, Consultant Gynaecological Surgeon at the Royal Marsden Hospital. Mr Butler and his team carried out my surgery in August 2016.

 There was a lot of preparation ahead of the day, and even more so on the morning of the event. I had some great helpers with me and it didn’t take long for it all to come together: we had amazing decorations, food and raffle prizes that people had so kindly donated. After a few hours of work, it was amazing to see the room ready for the event – I was so excited by that point! 

 The afternoon started with a chance for everyone to eat, drink and meet others. There were also lots of things on sale including some handmade cards and keyrings, as well as raffle tickets and auction prizes. Once everyone was seated I welcomed everyone and gave a short speech. I had been so nervous about the prospect of talking to a room a full of people. I think that blogging and talking about my experience has really helped me feel confident talking about cancer and my journey, but where public speaking is concerned, I’m used to talking to a class of children rather than a room of 150 adults using a microphone! Although, once I started to talk, my initial nerves disappeared and I actually ended up enjoying it.

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After my speech, Mr Butler presented a talk about the history of, and developments in, cancer and specifically ovarian cancer. He also spoke about BRCA gene mutations and the research and development that the Royal Marsden is doing in these areas. I learned so much from the talk. For example, about the developments in ovarian cancer treatment and drugs. While Mr Butler was talking, I remember looking around the room and seeing everyone so engaged, and I was so pleased to have played a part in raising awareness in this way. Mr Butler coincidently ended his talk with the same ending line as my speech – “knowledge is power,” which was great, as it was what I had hoped the main take home message of the day would be.

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 After Mr Butler’s talk, we held the raffle draw and auctionIt was so exciting and such a joy to see people win the amazing prizes that had been donated. It was at this point I had another really good look around the room to soak up the atmosphere and remind myself what all the hard work preparing had been for. I also couldn’t help but think how good it would be to do this again. And when I get an idea in my head, I tend to keep going with it, so watch this space for details of BRCAfest2018! 

 As soon as we had cleared the hall, a few of us sat round and started to count up the money we had raised. I am so excited to say that the grand total raised by BRCAfest was £5,402.17! This figure is just incredible, and it is so overwhelming to think about all the support that people have given in order for us to raise as much as we did. 

 Clearing up BRCAfest meant taking home A LOT of leftover food and when I saw just how much cake was left over, I instantly knew what I had to do. As I told everybody at BRCAfest, my medical team have been like my second family through treatment, and so I wanted them in some way to be part of the event. The next morning, I booked myself a cab and headed up to the Royal Marsden to deliver the cakes to some very special people who have, and continue to, take incredible care of me. They helped save my life and so giving them cake to have with their cups of tea on a Monday morning was just a small thing I can do to remind them all just how special they are to me. 

 I would like of say a huge thank you everybody who attended BRCAfest and those who donated gifts and food. And a special thanks to the children at Deansbrook Primary School and Little Reddings Primary School for making cards and keyrings that were on sale, to Fiona Cohen for afternoon doing her drawings for us and to Georgine Waller for capturing it all on camera. A big thank you to Hartley Hall for donating the venue for the event and finally to Mr Butler for being our guest speaker. 

 BRCAfest happened ten months to the day of my diagnosis, so on a personal note it was another celebration of how far I have come in such a short space of time. I often find it hard to make sense of just how much has happened in less than a year. I feel like a different person, and in many ways, I am. Photographs and images are an amazing way of capturing moments, good or bad but also for making sense of change. The photo on the left is from 9th June 2016 when I was on my way to see Mr Butler for the results and diagnosis, and the photo on the right is of me and Mr Butler at BRCAfest. To me these capture the same person, but also highlights some of the differences I see in myself.

 Now that the event is over, there are lots of things I need to focus on over the coming weeks. I have my Avastin treatment as well as my three monthly ‘breast MOT to check that my potentially killer mutant boobs are behaving themselves, and are only (thanks to the menopause) guilty of increasing in size…which I don‘t class as a real problem! I will also be taking a big step at work and getting back in front of a class of children to teach my first French class since May 2016. There is lots to come over the next few weeks, but the enjoyment and success of BRCAfest has definitely helped to set me up positively for it all! 

All photographs from BRCAfest 2017 can be accessed using the link below:

https://myalbum.com/embed/dMbZX2sppe0k

BRCAfest

It is nearly time for BRCAfest! We currently have 54 tickets that will be available on the door for £20. You can still purchase tickets online by using the link below.

https://www.eventbrite.co.uk/e/brcafest-tickets-32137050784

1:30-2:00 – There will be a chance to look at things to buy, purchase great drawings by Fiona Cohen, purchase raffle tickets, enter the auction and eat and drink lots of tasty food.

2:00 – A brief introduction by Laura Moses. This will be followed by a talk from Mr John Butler, who is a Consultant Gynaecological Oncology Surgeon at The Royal Marsden.

After the talk we will do the raffle and complete the auction! Please bring extra money with you, if you would like to take part in the raffle or auction. Raffle tickets cost £10 per 5 ticket strip, and we will be accepting cheques for auction prizes.

 

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Marching through March for the Marsden

On Sunday 19th March, The Royal Marsden held their annual Marsden March – a 14 or 5 mile walk between the Sutton and Chelsea hospital sites. Each year the march raises money for The Royal Marsden Cancer Charity, all of which goes toward treatment, research and support for cancer patients, with the ultimate goal being ‘a future beyond cancer.’ The charity also encourages people to host their own marches in support of the Royal Marsden Cancer Charity. This is exactly what my school, Little Reddings, did on Monday 20th March.

I’ve worked as a teacher at Little Reddings for about two years. I remember walking in for my interview and instantly getting a sense of just how supportive and friendly it was. Little Reddings has played an integral part in my personal and professional development as a teacher. Last year, before I had to stop working, I took on the role of French teacher and the Modern French Language coordinator. This position is something that I am incredibly proud of, and knowing that I had this to go back to after treatment, was a key factor in keeping me focused and motivated.

Our Marsden March started with me leading an assembly in the morning. I introduced the children to The Royal Marsden Hospital with photos and images. I spoke about my journey with ‘Cyril’ and played Rachel Platten’s ‘Fight Song’. I asked if anyone knew why this was such an important song to me; they rightly said that they thought it was because the song about fighting and staying positive. I explained that I first heard Calysta Bevier, a 16-year-old American young woman who is a survivor of stage 3 ovarian cancer, sing this song on America’s Got Talent, soon after I was diagnosed myself. Hearing this song was a significant moment for me; it soon became a song that I really connected with on an emotional level. There were times during treatment when I would listen to it repeatedly. I still put it on when I feel low or anxiety takes over. Hearing this song was probably the first time that I truly realised just how powerful music can be. Have a look at the videos below to hear Calysta Bevier and Rachel Platten singing ‘Fight Song.’

https://www.youtube.com/watch?v=9msiUy0JN64

https://www.youtube.com/watch?v=xo1VInw-SKc

I then spoke to the children about the history of The Royal Marsden Hospital, including The Oak Centre for children and young people diagnosed with cancer. I also talked about the staff at the hospital and all the different people who make the hospital run so smoothly, such as: the doctors, nurses, researchers, pathologists, physiotherapists, dieticians, psychologists, receptionists and the catering and cleaning staff. We went through some of these roles and I explained how each person’s role helps to keep the hospital running smoothly for the patients. My experience is that the staff often go above and beyond to make patients feel as comfortable as possible.  One example that I’m always reminded of is the catering lady on the chemotherapy day ward. Whenever I’m there, she always takes time to talk to me and remembers that I like apple juice, so makes sure I that I have some soon after arriving on the ward.

I showed the children some of the team who look after my care, we watched a video of the Duke of Cambridge talking about hospital and then a video about some of the more recent technology that the hospital uses. I wanted the children to see that technology, which is so important to our everyday lives with things like phones, computers and television, is also a vital tool in cancer treatment. By supporting the Royal Marsden Cancer Charity we are able to support the continued development and use of innovative, lifesaving technology. During my surgery, the team used something called a Plasma Jet; a surgical device used for women with advanced ovarian cancer. It allows surgeons to target and destroy ovarian cancer cells with greater precision and reduced side effects. Have a look at the link and the video below that explain more about the Plasma Jet and other technological advances used at the Marsden to treat cancer patients.

https://www.royalmarsden.nhs.uk/rm-magazine/new-technology-tackle-ovarian-cancer

https://www.youtube.com/watch?v=W5f5zz5fq40

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It was wonderful to see how focused the children were during the assembly and to hear the comments they made about the issues raised. The sad reality is that cancer is affecting more and more people, including many of their families, so it will be a word that continues to be so relevant to so many. When I first heard the word cancer, I was naturally filled with fear and dread (that’s how the name ‘Cyril’ came about; it felt less scary) As you go through the treatment, you start to see and understand all the different things that cancer can mean, and the national and international community of professionals who are dedicating their work to advancing cancer treatment and care. Over time, you begin to feel a little less fear about the word and see how it means a whole load of different things to different people. My feeling from my own experience is that we should be open and honest about it in order to try to normalise it.

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After assembly, it was time to march. We all headed out to the school grounds: staff, students and families – children from as young as five months took part and everybody was buzzing, even with the rain! It was an amazing feeling to see so much support and awareness. It was also an opportunity for people to reflect and think about those they know who have been affected by cancer. Some children spoke to me about this, talking about people they knew who had cancer. It confirmed for me the importance of providing, not just adults, but also children with chances to have these reflections. As a group we raised over £600 which, when transferred into my just giving account, took the total amount to over £10,000! I won’t even try to put in words what that means to me – really it is beyond anything I could have ever imagined… I keep clicking on the page just to see the figure!

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As we were marching, I was reminded of the fact that it was almost seven months to the day that I had my surgery (some of the key dates over the last year are permanently etched in my mind). To be surrounded by my colleagues, pupils and their families, as well as some of my family, was a reminder of how far I have come in such a short space of time. I’ve gone from being at the hospital every week to now spending more and more time back at school and getting back into my life as Laura, and not just Laura with cancer. I am so grateful to my colleagues, the pupils and their parents for their continued love and support. They have given, and continue to give me, hope, strength and courage. I love my Little Reddings family!

Our Marsden March was an example of how easy it is to march for the Marsden. You can do it, as they say, “anytime, anywhere”. So many of us enjoy going for walks, so why not add a new perspective to a walk you take in the future. For example, imagine if a group of ten people got together to do a mini My Marsden March and each got sponsored £1 by ten people. This would mean they would have raised £100 on a walk. Now imagine if ten of these groups did the same thing…amazing to think, isn’t it!

We marched on Monday 20th March, which is also another significant day – International Day of Happiness. And for me, it really was!

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Tea, Cake and Catwalk

On 11th March 2017, I was honoured to take part in the Tea with Ovacome fashion show alongside nine other ladies who have had, or are living with, ovarian cancer. Tea with Ovacome is an annual afternoon tea and fashion show founded by Adele Sewell, who herself is an ovarian cancer survivor. The main of aim of the day is to raise much needed awareness about ovarian cancer, whilst also being an opportunity to share experiences and celebrate the lives of those who have been affected by the disease.The event has continued to grow over the seven years that it has been running; this year tickets sold out in under 12 hours!
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I had been unable to attend the pre-event photo shoot a few months prior to the event, so the first time I met Adele, the event team, and the models, was on the morning of the show. Initially, the idea of taking part in a fashion show and walking up and down a catwalk in a room of about 200 people after having gone through cancer treatment felt scary and exposing. But this could not be further from the reality. From the moment I arrived, I instantly felt at ease and knew that the day would be unforgettable. As I started to meet and talk with the other models, I was soon aware of the courage, strength and determination that surrounded me. I was able to speak with women who have also had BRCA related ovarian cancer and to hear about their experiences of living with the genetic mutation.

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The photos in the slideshow above are by Kate Pigden 

We started the day by rehearsing our catwalk routines, which was so helpful with managing my anxiety about walking up and down a catwalk in heels; those who know me know that co-ordination is not always my strong point! We then had afternoon tea together before heading back to the rooms to have our hair, make up and nails done. By the time 5pm came, we were ready to take to the catwalk. My heart was popping out my chest as I stood there waiting to go out for the first time. However, when the time came to step out, the bright lights, applause and smiling faces turned my nerves into pure excitement and confidence. My family was there for the event and walking out and seeing them at the ‘Finding Cyril’ table was such a wonderful feeling!

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The day was filled with so many emotions: excitement and laughter, but also sadness and reflection. We were able to remember and celebrate the lives of women who have been part of the Tea with Ovacome community but have since passed. It was a poignant reminder of the reason we were all there; to raise awareness, knowledge and understanding about the disease, as well as provide support for women and their loved ones. Ovarian cancer continues to be one of the cancers which is all too often diagnosed in the late stages because the symptoms can be missed or confused with bowel symptoms. Having events such as Tea with Ovacome help to raise awareness about the disease and symptoms. I don’t imagine that there was one person who left the tea without thinking about it, and hopefully all will go on to have conversations with others about it. At the end of the day, the more these conversations are had, the more that women can know what to look out for.

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The photos in the slideshow above were taken by Ming Yeung, Getty Images 

Adele and the Tea with Ovacome team are continuing to build on their success with Tea with Ovacome.  They have organised the “Touch of Teal” Glitter Gala on 9th September 2017. This is the first ever dinner dance that they have put on and all proceeds will be donated equally to the following charities: Ovacome, Ovarian Cancer Action, Penny Brohn UK, The Royal Marsden Hospital and Target Ovarian Cancer. Once again women who have had or have ovarian cancer will model and speak at the event. You can buy tickets for the gala by clicking on the link below. If you would like to apply to model or be a speaker, or know somebody who might be interested in this unique opportunity, please get in touch with Adele by emailing: info@teamwithovacome.org.

https://www.eventbrite.co.uk/e/the-touch-of-teal-glitter-gala-tickets-32678837282?aff=es2

Ovarian cancer has meant that certain aspects of my life have changed significantly. One of the main ones being my body. I look different; I have a scar down my tummy (which I’m proud of), I’ve put on weight (which I’m pleased about) and I’m now menopausal which brings me a whole host of physical symptoms on a daily basis. Going though cancer, and especially the side effects of chemotherapy and surgery, makes you feel different about your body. At times it felt like my body was not mine and was there only to fight cancer. I remember also feeling anger towards my body after I was diagnosed. I was angry at it for letting ‘Cyril’ in, but over time I started to realise that my body actually did a good thing letting me know ‘Cyril’ was there and getting me to the point I am at now. Being part of this whole experience: going shopping with the team to find outfits, having hair and make-up done and walking down the catwalk alongside the other women gave me back some self-confidence that I had lost on this journey. It allowed me to see my body as my own and not just as a thing to fight cancer with, and to celebrate how far it and I have come.

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The final photo in this slideshow was taken by Ming Yeung, Getty Images 

Make time for tea!

On Tuesday 28th February, I was very privileged to attend the Eve Appeal’s launch of their March 2017 campaign: ‘Make Time for Tea.’ It was held at the House of Commons and I went along with my dad for a very special afternoon tea.

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From the moment I walked into the room, I got a sense of how important this event was going to be. The room was filled with: ovarian cancer survivors, patients who are still undergoing treatment for ovarian cancer, families who have lost loved ones to the terrible disease, and MPs and celebrities who are in support the Eve Appeal and their efforts to raise awareness of, not just ovarian cancer, but all gynaecological cancers. The focus for this event was ovarian cancer because March is ovarian cancer awareness month.

Athena Laminios, Chief Executive of the Eve Appeal,was one of the first people to speak. Her talk focused on the importance of us all talking more about gynaecological cancers to raise awareness. We as women can often end up avoiding conversations about our bodies, and especially our vaginas, because we end up feeling embarrassed about it. Athena highlighted how we must all try to not shy away from talking about these issues just because it can sometimes feel uncomfortable. It highlighted for me just how important it is to allow these conversations to happen, not just between us, but also in our wider society.

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We were also honoured to hear from some inspiring women about their personal experiences of ovarian cancer. Alison, who is an incredibly special woman and a huge inspiration to me, spoke about raising awareness of BRCA mutations and ovarian cancer. She has been, and continues to be, there for me since my diagnosis, and was one of the first people I spoke to when I was diagnosed. She immediately understood what I was feeling without me even having to say much. It was humbling to hear her talk about her personal cancer journey and determination to raise awareness about this important topic. I am so thankful to have such support, guidance and love from Alison and her family.

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I spoke with other women like Alison who have lived with ovarian cancer. One woman I met told me how for many years, she lived in fear of cancer, but now over time, feels free from this fear. It was so reassuring to hear from her; like all of the women I have met, hearing about her experience gave me hope and encouragement.

I also met a number of celebrity supporters of the charity, including Dr Christian Spencer Jessen and Lesley Joseph, as well as a number of MPs. It felt so special to talk with these people about my personal journey as well as the wider issues relevant to ovarian cancer.

I wanted to write a bit more about what Athena mentioned in her talk; the importance of us talking about our bodies and gynaecological symptoms. I identified so much with this when think back to my own experience. Back in May 2016, I got terrible tummy cramps, which seemed strange to me because I had already had my period that month. I remember noticing other new symptoms after this and initially, the only reason I kept asking my GP about whether it was to do with my ovaries was because of where the pain was, not because I suspected it was cancer. Back then, I had no idea about the symptoms of ovarian cancer. However, as the symptoms and pain continued, and I started to search the internet, I began feeling more uneasy about what the health professionals were telling me and so I kept going back. This is one of the reasons I decided to start blogging; I truly believe that knowing the symptoms means that you can be more aware of when things don’t feel right in your body. If I have learnt anything from my experience of diagnosis, it is that you know your body the best. I also feel strongly about raising awareness of ovarian cancer amongst women of all ages. I stress ‘all ages’ because although rare, ovarian cancer can still occur in younger women, like it did with me.

So the take home message for me from the event was for us all to try and be more comfortable with talking about our bodies, our vaginas and gynaecological symptoms. If we can try to have these conversations more openly, then we can continue to make it normal for women too talk about when things don’t feel quite right and subsequently get things checked. One of the most terrifying facts about ovarian cancer is that it is often diagnosed in its latter stages, and usually once the disease has spread. The symptoms are often the same as conditions such as irritable bowel syndrome or pre-menstrual syndrome. You can read more about this on the Eve Appeal website.

In aid of ovarian cancer awareness month, the Eve Appeal is asking everyone, women and men, to sit down for tea and start having these vital conversations about ovarian cancer, whilst also raising money for the cause. Have a look at the link below for more information.

So put the kettle on, slice the cake and let’s start talking!

Links and info:

  • Oliver Bonas have teamed up with the Eve Appeal and for the next two years, will be supporting The Eve Appeal through the sale of a number of products. All their profit will go to the charity, including all the in store carrier bag sales. https://www.oliverbonas.com/about-us/charity

BRCAfest update!

On 9th April, BRCAfest is taking place in Mill Hill. As well as having our raffle, we are also going to be having an auction on the day.

We have wonderful auction prizes.

1) accommodation for one week in Quinta Do Largo in the Algarve

2) a signed goodie from Jessica Ennis

3) two signed framed framed football shirts. One by Gareth Bale and the other by Juan Mata.

To be in with a chance to win these incredible prizes buy your tickets for BRCAfest now! Use the link below to purchase your tickets.

https://www.eventbrite.co.uk/e/brcafest-tickets-32137050784

Remember this event is going to spread vital awareness of BRCA mutations, hereditary cancers and the incredible work that the Royal Marsden does.

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BRCAfest

After I had my surgery in August 2016, my friend called me with an incredible idea. She had come up with an event to raise awareness about BRCA mutations and the associated hereditary cancers. With the support of our families, friends and lots of other people who have donated things we are very excited that BRCAfest (hopefully the first of many) will be taking place on 9th April. This is event is in support of the Royal Marsden Cancer Charity. Please see the flyer for more details. You can purchases tickets by clicking on the link below.

 

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 We are still looking for raffle prizes and soft drinks for the event. If you are able to help us with this, or know of anybody who is able to help us with this please email findingcyril@gmail.com.

I want to thank everybody again for their love and support. It means the world to me.

Happy birthday to me!

Today marks my 28th birthday and so it feels like an appropriate time to update Finding Cyril with a new blog. A lot has happened since I found that I was in remission on 16 November 2016. I have adjusted well to my three weekly Avastin treatments, I have started to go back to school, I feel able to go out and do more things, and as a result, have met some really lovely new people. It goes without saying that I have good and bad days. And then there are the days when I can experience what feels like every emotion under the sun in the space of a day. 

 It is hard to put into words what I am feeling on my birthday this year. It’s a real mix of emotions, thoughts and feelings. I thought I would try my hand at poetry as a way of expressing some of it. I’m no poet but here goes!

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The thing that comes to mind most of all today is how grateful I am to my team members who are helping me in my current boxing match with ‘Cyril’ (the match where the goal is to remain the champion). My team includes: my medical team, my Avastin treatment, my family and friends, my dog Oscar (concerning that I’ve just realised he has not been mentioned in this blog thus far), Chai Cancer Care and every person who has and continues to support Finding Cyril raise awareness and funds for the incredible Royal Marsden. Thank you all – you really have made this birthday one I’ll never forget. 

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Angels in comfortable shoes

I have spoken many times about the incredible medical team that looks after me. It consists of so many amazing people, but I wanted to write specifically about one group of people who are so integral in the supporting patients through their cancer journey: the nurses. As a patient, you end up meeting so many nurses: at chemotherapy, during inpatient admissions or at outpatient clinic appointments. Every nurse that I have met athe Royal Marsden has left a mark on me – and I don’t just mean at the site of my cannula! So to try and explain more, I’ve written about my experience of nurses from when I was diagnosed, throughout my chemotherapy and surgery and as I continue on with my treatment. 

 Diagnosis

On the 3rd June 2016, I entered the Royal Marsden for the first time clutching the hand of an A&E nurse who had decided to travel with me from Barnet hospital. She had made the journey with me because she saw how distressed and overwhelmed I was. When we arrived, I was met by an extremely caring nurse who did everything she could to make me feel calm whist I waited for the consultant to arrive. I always remembered her and how much she tried to put me at ease. Months later, on the 7th November, I was having my final chemotherapy session which had overrun as I needed a blood transfusion. The chemo ward was closing and so I was moved to a general inpatient ward to finish treatment. Unbeknown to her or me, she was my nurse that evening! It was such an emotional reunionI was able to update her on how my treatment had gone and tell her that I had succeeded in kicking ‘Cyril’ out of the boxing ring! This nurse put my first Marsden cannula in, and it seemed quite fitting that she took the cannula out from my final chemo session (shown in the photo below).

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 Chemotherapy and day treatment unit nurses 

I had eighteen sessions of chemotherapy and it did not take long for me to get to know all the amazing nurses on the chemo ward. They are always smiling, eager to know all about the things that you have been doing between sessions and always there to comfort you. They make you feel like a person and not just a cancer patient. The care they give you is nothing short of incredible.  For me, I always remember the small things: how they would take time to prep my hair for the scalp cooling, explain complicated medical things in a way that makes sense (even after I had asked them the same question numerous times!), make sure you are comfortable, warm enough, cool enough, hydrated and not hungry. They’re also always ready to have a laugh with you. I can think back to so many funny times when I had my pre-meds which would make me feel slightly drunk or make me wriggle in the chair because one of the pre-meds causes an itchy bottom! I still have my treatment every three weeks on the ward so still get to be looked after by this wonderful nursing team.

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 Inpatient ward nurses 

I also met many different nurses when I was admitted to hospital for my surgery.  I clearly remember the nurse who looked after me in the surgical admissions unit. He was amazing at keeping me calm when I was possibly the least calm I’ve ever felt. I obviously never met the nurses who assisted my operation, but I know from reading and talking with my consultant what an important role they have in theatre. Throughout my stay in Critical Care I was cared for so well. I remember waking up on the unit after surgery and knowing that I would be ok when I heard my nurse’s calming voice. Every nurse I met in this unit made me feel incredibly safe in the initial post operation period, which can seem really frightening at times. Again it was the small things: helping me to keep clean, doing my hair (without a hairband…one nurse managed to fashion a hairband out of the top of a surgical glove!), making sure I was comfortable with pillows, helping me to slowly start drinking fluids and just holding my hand and encouraging me when I was in pain.

 When I moved of the unit on the general ward the nurses were also brilliant. Each stage of your recovery requires something different and they seem to know just what you need to get you through itThe ward nurses were reassuring but also very encouraging; if they thought I could do something on my own they would help me to do it rather than do it for me. They helped me have a shower for the first time and were so encouraging with my rehab. After surgery one of the goals on the ward is to be able to get your catheter removed as soon as possible and use the bathroom instead. This obviously involves walking, which after surgery, is much harder than you can ever imagine. My nurse would keep encouraging me to walk just that little bit more each day because she knew I could get to the point of having it removed…which felt like such a big milestone. I also was so grateful to be able to talk to the nurses – they have so much experience that I always felt like they understood what it was like when I feeling low or having a bad day.

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Clinical Nurse Specialist 

 At the Royal Marsden you are also assigned a clinical specialist nurse who is there to support you throughout your journey. I met my nurse on my first night in the Royal Marsden back in June, and I know that she is always there when I need her. After my operation it was so helpful to talk through all of the possible symptoms of menopause with her, some of which I had never even considered before then. After having this conversation, I remember feeling a lot calmer about menopause because I knew what to expect. It’s also reassuring to know that there is someone on the end of a phone or email who you can contact with a question or worry. 

 So there’s a brief look at how the nurses at the Royal Marsden who have been, and continue to be, such an important part of my journey. They hold a very special place in my heart. As a patient, I’ve found that you never forget what the nurses say, what they do and how they make you feel. I would like to take this opportunity to thank, not just nurses that I have come in contact with, but to nurses in general. 

You may have started reading this blog and wondered about the title. When I was reading up on the role of nurses I came across the idea and it just seemed to completely fit with my experience of them. ‘Angel’ is one of the best ways to describe nurses. And the comfortable shoes…well if you’ve got to the end of this you will hopefully understand just how much nurses do in a day – even angels would get sore feet.

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Be BRCA aware